Hello all! Welcome back to my blog! I have talked a lot about being a person with a disability here on my blog.
I was born with my disability, but many people with a disability were not. The disability group is unique in that it is one minority group where people become part of it at any time. Accidents can happen, or illness can lead to disability. Also, as a person gets older, there is a large chance of them becoming disabled. Of all people with a disability, half are age 65 or older in my country of the United States. Overall, approximately 1 in 4 adults are living with some type of disability in the United States.
Unfortunately, some people have a disability that is debilitating enough to keep them from working. Fortunately, there is financial support available for such people. One program set by the United States government is Social Security Disability Insurance or SSDI. With SSDI you can receive financial support monthly. If you are dealing with a disability, you can get help to find out if you are eligible for SSDI and even how much money you might get each month from Disability advocacy group Disability Advice. A post with an SSDI calculator and details about SSDI benefits can be found on their website.
The post was written by Linda Cosme, JD. She has extensive experience as a lawyer and advocate for people with disability. She is currently Vice President of Disability Policy and Strategy at an advocate organization called Citizens Disability. Independent Legal Consultant for those seeking SSDI, appeals officer for the Social Security Administration, and Case Adjudication Specialist for Disability Determination Services were some of her other roles.
Checkout Disability Advice’s website and find out more about SSDI and if you should apply. Click here.
Access to affordable healthcare is a huge issue in the United States. Many people are uninsured. Access to healthcare is necessary and should be a right. Read more about the issue with healthcare in my latest blog post.
Some time ago, I wrote two posts entitled “Why is Healthcare so Expensive?”. In those posts, I went over how difficult it can be to get mental health services and some of my medical costs as a person with a chronic condition and mental illness. You can read part one here. You can read part two here.
For those who are new to my blog, I live in the United States. Here in the USA, healthcare can be quite costly. A three day stay in the hospital can run you around $30,000. A woman usually stays in the hospital between 24 hours to four days after giving birth. My own mother stayed in the hospital for around three days after having me. That’s where health insurance comes in. In order to have insurance, you have to pay what is called a premium. This is the payment to the insurance company to keep your insurance active, which is usually a monthly payment. My insurance plan covers the costs of my doctor visits and medication bills completely, but that is not the case for most Americans.
For many Americans, there is a copayment. For a doctor appointment, one family member of mine had to pay over $700 in copayment. Another family member recently renewed her insurance plan, and she has to pay around $1,100 in medical bills before her insurance even kicks in. This is called a deductible.
Healthcare is big business here in the United States, with the health insurance business valuing at $1.60 trillion. In 2023, 25.3 million people were uninsured between the ages of 0 to 64. Among those uninsured, 63 percent of people between the ages of 18 to 64 cited not being able to afford insurance as the reason for being uninsured.
There are two services I have always believed all people should be entitled to: good education and good healthcare. A healthy and educated nation makes a strong nation. I believe we as a nation need to do more to help the citizens have better access to healthcare.
“What the teacher is, is more important than what he teaches.” – Karl Menninger
What makes a teacher great is compassion and the ability to connect with one’s students.
I have talked several times about amazing teachers on my blog. I have also talked several times about being a person with a disability. My disability made going through school difficult. Despite my struggles through school, I have a college degree, and I managed to graduate college with honors. I wouldn’t have been successful without the help of wonderful and compassionate educators. One such educator was one of my college professors, who I will call Prof. A.
Since I was a student with a disability, I received accommodations. One accommodation I received was extra time on exams. Also, I took my exams in a separate location from my classmates to lower distractions, usually in a room at the office for students with disabilities. During one exam for Prof. A, I was unable to finish the test, even with the extra time. Prof. A took the time to check on me while I was taking the exam. When she found out I wasn’t finished with the test when time was up, she told me not to worry. She took me to her office and had me continue the test there. Before she took me to her office to finish the exam though, she took me to the cafeteria to eat, knowing that I had been working on the test for hours.
In that moment, Prof. A showed me what it really means to be an educator. She showed me that teaching includes more than the ability to pass on information in a digestible way. Teaching also comes with a heart ready to love and understand. This is a what makes a great teacher.
I just received a notification from WordPress that said I’ve published over 100 posts on the platform! Yay me! But seriously, this is wonderful. One of my fears when I started blogging was that I would run of ideas to write. Here I am nearly six years and 100 posts later, and I’m still going. I started this blog because I believe everyone has an interesting and important story to tell, and I wanted to share mine.
Sharing my story and experiences has been a wonderful journey so far. I’ve talked a lot about my experience with a genetic disorder called Turner syndrome on my blog. For years after I was diagnosed as a teenager, I kept my condition to myself, only sharing it with a very select few people. As I grew older, I started advocating for myself, and I needed people to understand what my day to day life is like as a woman with Turner syndrome. This inspired me to share my story. One of my first blog posts was “Imperfectly Perfect: Life with Turner Syndrome”. The truth is, I actually wrote this blog post for a major magazine. I submitted it, but never heard back from any representative from the magazine company. That’s when I decided to create my own platform. That’s how Life with Charli came about! I was nervous about starting a blog, but I realized that if I wanted more awareness on Turner syndrome, I needed to be comfortable with sharing my story.
I have also talked a lot about dealing with mental illness on my blog. I have mentioned many times on my blog that was hesitant to start therapy and medication for my mental illness. To be honest, even up to the time I started my blog, I was still hesitant. However, I noticed a lot of other bloggers boldly talking about mental illness with no shame. Then, one day, I asked on one of X, then Twitter, if anyone would like to share their story on my blog.
I was so happy when I got a response from a fellow writer Lesley Skinner. When Lesley told me that she wanted to write about mental illness, I gladly collaborated with her and published “Christianity and Mental Health”. Around that time, a fellow blogger, Nadine, shouted me out as a fellow mental health advocate.
I was shocked, because I didn’t see myself as one. However, I happily accepted the praise. It wasn’t really my intention to focus on mental health, but looking back, that was a topic I have been talking about from my very first post “This is Life: Your Purpose, Your gift”, which focused on self love. Other early posts that followed also focused on mental health, like “Judgements and Assumptions”, which focused on social anxiety. I just did not realize how connected to mental health those posts were. I was just writing my experience. Amazingly, people were listening responding so positively to what I had to say. Little did my fellow bloggers know, though, that I was listening to them too. I decided to reach out for help with my mental illness like so many of my fellow bloggers, and was officially diagnosed with depression and borderline personality disorder.
It felt so good to finally be getting help. I’m very grateful to the bloggers who have had an influence on my mental health and blogging journey. With the beautiful feedback I have been receiving throughout my time blogging, I know my story has reached others as well. For instance, a beautiful soul took the time to send this email to me:
A very warm thankyou to you my friend, and to all those who have been supporting me through all this time. If you are sharing your story online like me, know that people are watching and listening. You are making an impact on someone’s life. Keep sharing your story.
Thankyou for visiting and helping me celebrate 100 published posts. Here’s to 100 more.
I recently read in the news that a television personality named John Brenkus passed away by suicide on May 31st of this year. He was 54 years old. He was a well known figure in the sports world. I have talked about my journey with mental illness many times on here on my blog. One of the hardest but best decisions I’ve ever made was seeking help. I have been suffering from mental illness from the time I was a child. Stigma kept me from reaching out for help for a very long time. As I read through the comments on the article about John Brenkus’s passing, I realized that even though we have come a long way with fighting stigma on mental illness we still have a long way to go.
Many of the comments fit into two groups. The first group are those who downplayed the seriousness depression, such as the examples below:
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The second was those who thought suicide is a cowardly or selfish act, such as those below:
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However, I did find comments that showed understanding and compassion:
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Depression is a serious mental illness, and someone who loses his or her battle with the illness was not weak or a coward. As someone who is dealing with depression myself, I can say it is not an easy condition to live with, and I wouldn’t wish it on anyone. It’s hard to understand unless one is actually dealing with the illness his or herself, but compassion is not hard. I have had the pleasure of meeting many wonderful people online during my time as a blogger, but it is the truth that the internet can also bring out the ugly side side of humanity. The way to fight to fight the stigma of mental illness is through compassion. Compassion leads us to seeing each other as fellow human being worthy of love and understanding. So let’s try to be more loving and compassionate.
For those of you who are struggling with mental illness, please reach out for help if you have not done so already. If you are or someone you know is ever in a crisis, please reach out to your country’s crisis hotline. The hotline in the United States, where I, live is 988.
Thankyou for reading, and I’ll see guys in the next post!
This week has been Teacher Appreciation Week here in the United States! I have discussed my status as a person with a disability and mental illness several times here on my blog. Many educators I have met have been so understanding of my disability and mental illness. I have written two post about wonderful teachers I have had, and you can read them here and here. This is another post celebrating an excellent teacher.
Years ago when I was in kindergarten, I had two great teachers. However, I spent a significant amount time with one of them. It wasn’t until I was older when I got a chance to talk with her about her experience as an educator that I found out she wasn’t a teacher yet during the time she was teaching me. She was a paraprofessional, and was in the process of becoming a teacher. For those who don’t know what a paraprofessional is, a paraprofessional is a person who “supports teachers and students in many ways. For instance, a paraprofessional can tutor students or assist the teacher with managing the classroom and organizing instructional materials”. Paraprofessionals also help with “providing students with one-on-one guidance and handling behavioral or medical issues”.
It was interesting to find out that one of my kindergarten teachers was not exactly a teacher yet. However, then again, I should not have been so surprised. I was a student with special needs who needed extra attention, and giving students the extra attention they need is part of a paraprofessional’s job. My kindergarten teacher did not just give me extra attention though. She was extremely kind, loving, and patient. Even at my very young age of five, I knew she cared deeply for me, and so I cared deeply for her in return. She eventually did become a full fledged teacher, running her own classes and then eventually a department head.
I admire and appreciate her for the time she took to not only nurture my learning, but also my well-being. I definitely felt special with her, but I’m sure I was not her only student who felt this way. It is clear she is a passionate educator. Miss. H, Thankyou for everything, and happy teacher’s appreciation week.
Hi all! Welcome back to my blog! As some of you may know, I deal with mental illness. I have depression and borderline personality disorder. For a long time, I was hesitant to reach out for help with my mental health, but I finally starting going to therapy in 2019. Even though I decided to get help with my mental health, I was still very hesitant to take medication. I’m usually hesitant about taking new medication, but I was even more reluctant to take psychiatric medication. I am now on an antidepressant and an antipsychotic. According to the United States Centers for Disease Control and Prevention, 16.5 percent of American adults were taking medication for mental illness in 2020. A combination of therapy and medication is the most effective way to manage mental illness.
The different types of psychiatric medications are antidepressants, anti-anxiety medications, stimulants, antipsychotics, and mood stabilizers. Antidepressants are mainly used to treat depression, although they can also be used to treat anxiety, pain, and insomnia as well. Anti-anxiety medications are used to treat anxiety, although antidepressants can also be used for anxiety and are usually prescribed initially before anti-anxiety medication. Stimulants are used to treat Attention-Deficit/Hyperactivity Disorder (ADHD). It can also treat narcolepsy. Stimulants can improve alertness and focus. Antipsychotics are used to treat psychosis. Conditions that involve psychosis are bipolar disorder, schizophrenia, and severe psychotic depression. Mood stabilizers are often used to treat bipolar disorder, but can be used to help with mood regulation in other mental illnesses as well. Psychiatric medication can be very helpful, but they have their cons as well. This is why there are those who warn against taking psychiatric medication, including members of the British royal family.
Thomas Kingston, a member of the British royal family through marriage, died by suicide in February last year in 2024. His family was left devastated, and are now advocating for better communication between doctors and patients about the serious side effects of psychiatric medications. The coroner who handled looking into the cause of Mr. Kingston’s death also warned about the side effects of psychiatric medications. Psychiatric medications do have some serious side effects. With antidepressants, some side effects are upset stomach, headache, or sexual dysfunction. In young people under the age of 25, antidepressants can cause suicidal thoughts. Some children on stimulants feel unlike their usual selves. Antipsychotics can cause stroke or death in older adults. Older first generation antipsychotics, often called typical antipsychotics, can lead a condition called Tardive dyskinesia, which is when muscles in the body move uncontrollably. People on newer generation antipsychotics, or atypical antipsychotics, generally need to have their weight, glucose levels, and lipid levels monitored by their doctor. One very commonly used mood stabilizer is lithium. Those who take lithium need to have their lithium levels routinely checked, as overdosing on lithium can cause serious side effects. Also, stopping any psychiatric medication abruptly can lead to withdrawal symptoms. Hopefully, Mr. Thomas Kingston was informed about the side effects of the particular medication he was prescribed.
One of the medications Kingston was at first prescribed was sertraline. After returning to his doctor and reporting that the medication was not working, he was put on citalopram. At the time of his death, Kingston had stopped taking the antidepressants. As mentioned previously, stopping psychiatric medication can lead to withdrawal symptoms. It is very imperative that mental health professionals are transparent about the side effects of psychiatric drugs, but it is also very important that patients closely follow the instructions of the doctor.
Making the choice of whether or not to take psychiatric medication is a serious decision to make. It is important to know that everyone’s body reacts differently to medication. Some people may suffer bad side effects. However, there are many people who experience minimal side effects or none at all and find psychiatric medications to be life saving. Whether or not a person should take medication or not doesn’t have an easy answer. However, being informed can make the decision to take medication and dealing with medication easier.
Hello everyone! Well guys, we are at the beginning of a new year again! As I was thinking about what I wanted to post next on my blog, I began thinking about how far I have come on my journey with working on my mental health. I started working on my mental health in 2020. I started from being afraid of going to therapy to firmly advocating for it. I went from being against psychiatric medication to believing in their effectiveness.
My journey has not been easy, and I have had a few depressive episodes and break downs. Last year though, I am proud to say that I have not had any depressive episodes or breakdowns. I’ve been feeling more confident than I’ve ever felt before. I’m doing so well with my mental health that I am even having less therapy sessions. At the beginning of my mental health journey, I was going to therapy 3 times a week. That’s how bad my mental health was. Now I’m seeing a therapist once every two weeks. My mental health is not perfect, but I feel so different than I felt before starting my mental health journey. I never thought I would reach to a point where I would be able to say I truly loved myself. I have never felt better. I am very much looking forward to another year of mental stability.
Hello all! Missed me? It’s been a while! I’m really sorry about that! I’ve been a little busy! I’m going to college soon, so I’ve been pretty busy preparing! I haven’t even been on social media in a while, and I particularly enjoy Twitter! I haven’t forgotten about my blog though! I don’t plan on ever giving up on this blog no matter what!
With that update out of the way, let’s move on to another topic: coffee! Did you know that October 1st was National Coffee Day? How many of you out there love coffee? If you didn’t know before, I live in the United States, and we love coffee over here! According to the National Coffee Association, 7 in 10 Americans consume coffee every week, and the average American drinks more than 3 cups of coffee per day.
In honor of this popular drink, I thought I would tell you about my first time drinking coffee! I saw two teenage girls making a drink at a machine while I was waiting in a waiting room at a school. I thought the girls were making hot chocolate, and I wanted some too. The problem was they weren’t making hot chocolate! They were making coffee, and a small child shouldn’t be drinking coffee! One of the teenage girls pointed that out, but the other girl said it was fine and made a cup for me. It was delicious! It was so good that I wanted to a second cup. Unfortunately, I didn’t know how to work the machine, and the two teenage girls had already left. I decided to try my luck on my own with the machine, but before before I could figure out what I was doing, I was caught by my very upset mother.
I hope you enjoyed my little story! Do you like coffee? How often do you drink coffee, if at all? When was your first time drinking coffee? Thankyou for visiting and reading! Until next time!
My father recently introduced me to Netflix’s Anne with an E. It’s a show inspired by novel series Anne of Green Gables by Canadian author Lucy Maud “L.M.” Montgomery. For those who are unfamiliar with Anne of Green Gables or Anne with an E, it is a story that follows the life of a very bright and curious red haired young girl named Anne. The story begins with her meeting an elderly brother and sister named Matthew and Marilla Cuthbert.
My Dad loves Anne with an E. We watched it together several times recently. He just adores Anne and finds her so endearing. I love Anne too. There is no way you can watch the show and not fall for her charm. When the Cuthberts met Anne, they immediately loved her, especially Matthew. She changed their lives for the better. Matthew is shy and reserved, and is a man of few words. Meeting Anne helps him to come out of his shell a little. For her, he would do anything. It got to the point where Marilla often teased that Matthew spoiled Anne.
Matthew did not expect this change in his life. It reminds me of me of how my father wasn’t expecting his life to take the turn it did. My father was still in school, and expecting to continue school, when he met and fell in love with my mother. They got married and started a family. My father vowed when he had a his first child that he would do anything to make sure he was the best father he could be. Over the years, his children wanted for nothing. He was the ultimate provider. It was a struggle to provide everything his children needed and wanted, but his children never felt the struggle. Their father simply made being a parent look effortless. To my father, life was hard, but to his children, life was perfect.
I really enjoyed spending time watching Anne with an E with my Dad. It was lots of fun. As I mentioned before, Dad really loved Anne. I loved Matthew and his relationship with Anne. He showered her with love in his own special, quiet way, and Anne appreciated him for it, just like I appreciate my Dad for the sacrifices he made for me. I wish my father a very happy Father’s Day. He deserves my appreciation and so much more.
Life with Charli 