Join my Facebook Group for Mental Illness and Disability

Hi all,

Welcome back to those who have visited my blog before! If you’re new, welcome, and let me introduce myself! 

My name is Charli Dee. I was born with a genetic disorder called Turner syndrome. Turner syndrome is a condition when a girl is born with one of her X chromosomes partially or completely missing. This can lead to a lot of complications. I talk a lot about the complications I deal with here on my blog. You can visit those posts here.

I have also been dealing mental illness, more specifically depression. I talk a lot about my mental health journey on my blog as well. You can visit those posts here.

For a long time, I kept my struggles to myself. That means I didn’t have peer support from people who would understand what I have been going through. Part of why I started this blog is to share my experiences so people know they are not alone. Now I am starting a Facebook group so we can support each other. 

If you are interested in having a private safe space to discuss your unique experiences, join my brand new Facebook support group. Click here to join. 

Thankyou for reading and your support! Let’s continue supporting each other! 

Children with Disabilities have Worth

A very popular YouTube couple expecting their first child chose to terminate the pregnancy after discovering the baby had a high chance of being born with Down syndrome. He shared the news with complications that can come with the condition.

“Down syndrome carries a very HIGH risk of miscarriage and usually comes with heart defects, structural abnormalities, developmental issues, shorter lifespan, etc. As excited as we are to become parents, this was a gut-punch”, he shared with his followers.

Yes, Down syndrome comes with complications. However, the complications are only part of the story. Down syndrome is actually a very common, “occurring in 1 of 700 live births”. Many people with Down syndrome live fulfilling lives, with some going on to college and living independently. With medical and technological advancements, the lifespan of people with Down syndrome has increased to around 60 years of age

I have Turner syndrome, which is a genetic disorder like Down syndrome. Turner syndrome also comes with a lot of complications. Turner syndrome is a genetic disorder, and can be diagnosed in the womb through genetic testing like Down syndrome. I wasn’t diagnosed until I was around 13 years old, but it is possible my parents could have found out I have Turner syndrome before I was even born. They would have been able to choose abortion due to the fear of complications and raising a special needs child. My parents would not have chosen that route. However, they could have, and I would not be here sharing my story on my blog.

I’ve seen expecting parents express fear at having a child with Turner syndrome, just like I’m sure expecting parents do when having a child with Down syndrome. Knowing your child will have special needs can be scary. Raising a child with special needs is hard. I get it. This is why support and sound facts are important, all the facts. Yes, parents need to know life might be hard for their special needs child, but parents also need to know life can be happy and fulfilling for that child as well. It’s not all gloom and doom. 

I’m happy to be alive, and I know I’m here for a reason. I believe that YouTube couple’s baby had a purpose too. Sadly, we’ll never know what it would have been. 

Mental Illness Does Not Equal Violence

A little while ago, my father and I watched a documentary together about a man called Theodore Kaczynski, also known as the Unabomber. For almost two decades between 1979 and 1996, Kaczynski sent bombs to airlines and universities, hence the nickname. Three people were killed by his actions and around two dozen others were injured

When Kaczynski was finally caught in 1996, the prosecutors wanted to push for the death penalty. Kaczynski’s defense team wanted to plea not guilty by reason of insanity. After a psychiatric evaluation ruled that Kaczynski had paranoid schizophrenia, the prosecutors dropped the death penalty. Kaczynski was sentenced to life in prison without the possibility of parole, and he wasn’t allowed to appeal the decision of the case. He took his own life in 2023. Towards the end of his life, he was diagnosed with cancer, and seemed to be going through depression around that time.

Watching the documentary on Theodore Kaczynski made me think about violence and mental illness. It is true that Kaczynski was diagnosed with schizophrenia and depression, and he committed crimes. It is also true, however, that mental illness doesn’t have to lead to violence. Theodore Kaczynski’s case was years ago. Mental health advocacy has helped to break the stigma on mental illness. However, there is still a ways to go. Just last year in 2025, the vice president of the United States JD Vance stated there is a mental health crisis in the United States when addressing the concern of gun violence in the country. 

“We really do have, I think, a mental health crisis in the United States of America. We take way more psychiatric medication than any other nation on Earth, and I think it’s time for us to start asking some very hard questions about the root causes of this violence,” the U.S. vice president said

Robert F. Kennedy Jr. , who is the Health and Human Services Secretary said the National Institutes of Health are “launching studies on the potential contribution of some of the SSRI drugs and some of the other psychiatric drugs that might be contributing to violence”

JD Vance and Robert F. Kennedy Jr. seem to be assuming that mental illness causes violence. The truth is, only around 3 to 5 percent of violent acts are committed by people with severe mental illnesses. Also, only around 1 percent of gun related deaths are caused by people with severe mental illnesses. People with mental illnesses are actually more likely to be victims of a crime than perpetrators. For instance, Schizophrenia is a very stigmatized mental illness. In one research study, around 2.3 percent of people diagnosed with schizophrenia had been charged for a crime, while 34% of people with the condition had been victims of a crime around the same time of the study. 

I have long been under the impression that mental illness is not an excuse for evil deeds. An evil person is just evil, whether that person is living with mental illness or not. I have a family member who works with children with disabilities. Sometimes the parents coddle their children. Sometimes if the parents are told that their child is biting or scratching the teacher and other children, the parents might say “my child does that sometimes”. Wrong response. The child should not be not be attacking the teacher or other children any time. Disability does not need to lead to bad behavior. Same with mental illness. Society should not immediately point to mental illness as the reason a person committed a crime. That only leads to stigma around mental illness, and many people believing that having a mental illness equals violent. That can cause a person with mental illness to avoid getting help because they don’t want the label. I used to be one of those people. 

More and more people are reaching out for help with mental illness. More and more advocates are speaking out. I love seeing it. Unfortunately, stigma still exists, so there is still work to do. If you are dealing with mental illness, know that there is nothing to be ashamed of. Know that your mental illness does not make you a bad person. 

Thankyou for reading, and see you in the next post!

Coffee, Smoothies, and Confidence

Hello all, and welcome back to my blog! In a recent post, I discussed spending more time with my family and how it’s been helping my mental health. I talked about visiting a cafe with a family member. It was amazing bonding with him, and we plan to visit that cafe again.

On another day, I and that same family member went to smoothie shop with another family member. The three of us bought different smoothies, but we also tried each other’s drinks. I loved all three! We even talked for a while with the owner of the store. He was so pleasant and easy to talk to. We’ll definitely be returning to that smoothie shop!


In a post I wrote a while ago called Judgements and Assumptions, I talked about my social anxiety. I went in to detail about how I assume people are always judging me, and that made me nervous. Even interacting with people I know well caused anxiety. I’m still learning to be more confident, but I’ve come a long way since I wrote Judgments and Assumptions. I’m feeling more comfortable in family gatherings, and moments like at the cafe and smoothie shop showed me that my family enjoys spending time with me.

I still get nervous from time to time, but I’m learning to push through the anxiety by embracing who I really am. I also remind myself that I am loved. Realistically, not everyone is going to like you, but that is ok. You also have people you will always be in your corner. 

Here is a reminder that you have worth, and a little encouragement to step out of your comfort zone. 

Until next time. 💋 xoxo

Living with Turner Syndrome and Disability

Did you know that February is Turner Syndrome Awareness Month? Since we’re in March now, I’m late to helping spread awareness, but better late than never as is always said! Also, any time is a good time to spread awareness! I’ve talked a lot about my experience with Turner syndrome on this blog, and I wanted to share a little more in this latest post. I haven’t talked much about this on my blog, but I receive disability benefits. It was not easy to prove that I really needed the benefits, as my disability is invisible. I was diagnosed with Turner syndrome at around 13 years of age. Turner syndrome can cause a lot of complications. One of those complications are learning difficulties, which I have. 

Even before I was diagnosed with Turner syndrome, my parents and teachers noticed I was struggling to keep up with my peers. This made school and many everyday activities difficult for me. My father wrote a heartfelt letter detailing his experience raising me and my day to day struggles. He sent it to the court handling my case for disability benefits, and the court clerk read it. The clerk cried and suggested the judge read the letter too. The judge did read the letter and ruled in favor of my father and I. This was just the first of several hills to climb in my adulthood concerning help with my disability. 

Recently, my father found the letter he wrote, and I read it over. It was very interesting reading about my day to day struggles through my father’s perspective. To most people meeting me, I might not appear to have any disabilities, especially if they just spend a few minutes with me. However, to my father and those who know me well, my disabilities are striking. Also, Turner syndrome and the complications connected to the disorder are not well known, so those assessing the need for disability benefits had a difficult time understanding why I need them. 

Turner syndrome affects those with the condition differently, so it’s important to clarify that the condition does not always lead to disability. Many women lead typical lives. However, for those like me who do develop difficulties, it is important for them to feel supported. I started my blog for this reason. For a long time after I was diagnosed with TS, I didn’t want tell anyone about my condition. I only told a few people and kept many others at arms length. As time rolled on and I struggled with getting disability benefits, I knew I could no longer keep my condition to myself. I knew I had to share my experiences. My hope is other girls and women with TS feel understood. 

There is nothing wrong with living with a disability. Sometimes it can be a different and beautiful way of experiencing the world. However, it is important to remember that not all disabilities are easily visible, and people with disabilities can live typical lives with a little support.

Body and Mind

Hello everyone! Welcome back to my blog! I’m so sorry I’ve been away for a while! Life definitely has a way of keeping us busy! However, I made sure to have some down time too. For a long time now, I’ve been talking a lot about my mental health. For those who are new to my blog, I suffer from depression. It took a long time for me to start seeing a therapist and even longer for me to start psychiatric medication. I didn’t want to admit that I had a mental illness, but I was in desperate need of help. My mental health was so bad that medical staff asked if I would like to be hospitalized during my consultation to start therapy. I declined hospitalization. The staff respected my decision, but connected me with a therapist and psychiatrist right away. I started seeing a therapist every week and a psychiatrist every month. I was given the contact information for my mental health team and the Suicide Prevention Hotline, all of which I used frequently. I’m very grateful for the efforts of my mental health team, and I’m happy to share that I’m seeing a therapist and psychiatrist once a month now. I’m to the point where I can’t fully remember the last time I had a depressive episode or contacted the suicide prevention hotline. I’m happier than I’ve been in a long time.

My improved mental health has had a wonderful impact on my everyday life, particularly my social life. I’ve always had a very close relationship with my family, but now I’ve become even closer with them since my mental health started improving. I used keep to myself and avoid family gatherings, feeling my presence wasn’t wanted or a burden. I know better now, and know how much I’m loved. I regret missing out on so many moments with my family. I don’t take spending time with them for granted anymore, and treasure each moment. Last summer, I went to a barbecue where I had lots of fun, and in the Fall we went to a farm. We took so many pictures at the farm and picked lots of apples. Just last week, one of my siblings and I went to a cafe. We made ourselves comfortable and bonded over a yummy donut and delicious coffee. We also bonded on our walk to and from the cafe. My depression made me feel isolated, and if I was still struggling, I would have missed out on building precious memories with my family. 

Now that my mental health is looking good, I’ve been trying to get my physical health in order as well. Mental and physical health compliment each other after all. I want to look as good as I feel. I’ve started gaining a lot of weight in a short amount of time. Late last year, my father and I agreed to start putting some exercise into our schedules for the new year. We’ve been keeping our promise to each other so far, but it definitely hasn’t been easy. Not only has exercising been helping with my physical health, it has helped with my already close relationship with my Dad. Exercising together has brought us even closer. 

The start of my mental health journey was definitely a turning point for me. I have changed for the better. During a conversation with my pastor at church recently, he asked if there was a period in my life I would return to. I answered there is no time in my life I would return to. “I’m happy with the life I have now” I said. For once, I really meant it.

Guest Post – World Mental Health Day: A Quiet Invitation to Check In

By: Laiba Noor

Hey friends,
October 10 was World Mental Health Day, a reminder (and an invitation) to slow down, pause, and notice what’s going on inside. On the surface, life might look okay. We wake up, go about our routines, and smile. But beneath, there might be places in our hearts or minds that feel heavy, empty, or strained.

I want this post to feel like a conversation, not a lecture. A friend sitting across from you, answering with honesty, saying: you’re not alone.

Why this day matters

We live in a time when everything seems to move fast. Deadlines, expectations, social media, relationships, all these demand our attention. It’s easy to neglect the internal work. But mental health isn’t just about surviving; it’s about thriving or at least finding peace in the in-between days.

World Mental Health Day is more than a hashtag or awareness campaign. It’s an opportunity. An invitation to:

• Speak gently to yourself.

• Seek help without shame.

• Reach out to others.

• Make small changes that honor your emotional world.

It’s a permission slip, permission to rest, to step back, to feel and heal.

Recognizing the whispers before they become cries

I’ve found that life doesn’t often crash in one dramatic moment. It leaks. It seeps. A few missed nights of sleep. A few small irritations. A creeping apathy. These are the soft signals.

Here are some things to watch for:

• Fatigue that lingers even after rest.

• Losing interest in things you once loved.

• Feeling irritable without warning.

• Anxiety that mutates into dread.

• Difficulty focusing, or mind wandering constantly.

• Withdrawing from people you care about.

If you notice these in yourself or someone else, don’t rush past them. Sit with them. Ask: What’s happening right now? What needs tending?

Small acts of care that really matter

We don’t always need big solutions. Sometimes, small, consistent acts make the difference. Here’s what I try (and fail and try again) in my own life:

• Breathing breaks: Even 2 minutes of deep, slow breaths can reset your nervous system.

• Gentle movement: Walking, stretching, dancing, anything that moves your body with kindness.

• Digital boundaries: Limiting doom-scrolling; turning off notifications at set times.

• Journaling: Nothing fancy, just writing what’s inside, without judgment.

• Talking to someone: A friend, a counselor, someone safe.

• Asking for help: Sometimes “help” is just someone listening.

• Saying no: Protecting your space and energy.

• Creating small rituals: A warm drink, a short walk, reading a few pages.

These aren’t cures. They’re lifelines. They remind us: I matter. My mental state matters.

When you need more, reaching out is strength

There’s a myth that asking for help means you’ve failed. That’s untrue. In fact, reaching out is one of the bravest things we can do.

Therapists, support groups, helplines. These are tools, not signs of weakness. Sometimes, we can’t see ourselves clearly; we need someone else to help us untangle. If you’re in doubt: call someone you trust, even if just to say I’m not okay. That’s a start.

If you’re in Pakistan, or anywhere, there are local mental health organizations and helplines (you can Google “mental health helpline in [your city/country]”). If you need help finding one, I’m here. I can look it up and share.

For those standing beside someone struggling

If you know someone wrestling with mental health:

• Listen more than you speak.

• Avoid quick fixes (“just cheer up”).

• Show up, even in silence.

• Ask simple questions with care: “How are you, really?”

• Encourage professional help gently.

• Remind them they’re not a burden.

You don’t have to have all the answers. Your presence matters.

A closing note from me to you

In honor of World Mental Health Day, I want to leave you with kindness. Wherever you are in your journey. Whether in calm, in chaos, in trying, in healing. May you lean toward light. May you listen to your inner world. May you find someone to walk with you, even for a little while. May you give yourself permission to just be.

If this post resonates, share it. If it doesn’t, take from it what you need. And if you ever want to talk, whenever I’ll listen!

With light & care,
  Laiba Noor.

Meet the Author:

This beautiful piece was written by Laiba Noor. Laiba is a hardworking Content Creator, Social Media Manager and Influencer Marketer who lives in Pakistan. If you enjoyed this post and would like to work with Laiba, you can reach her on LinkedIn or Instagram

Good Things Need to be Maintained

I have been talking a lot about mental health and illnesses on my platforms. For those who do not know, I have depression and Borderline Personality Disorder. I have been going to therapy for a while now, and I am pretty stable. I haven’t had a depressive episode in a long time. I’ve been feeling healthy and happy. Now the focus is on maintaining my good mental health. Maintenance is very important part of the process having good mental health, even for those who don’t have a mental illness. Read my the latest post on my blog to go in depth on the importance of maintaining your healthy mental health. Thankyou for this opportunity Plumbers Rockhampton!

By: Justin Hope

People spend thousands on home renovations. They splash out on shiny new sinks, redo the showers, and turn a tired old bathroom into something that looks amazing. Good plumbing and renovations like this can last years… but only when it is maintained. When things get neglected, stuff eventually breaks down. As a plumbing blog writer, I want to show you how, like our plumbing, we need to look after our mental health. Most of us know how to maintain the things we own. We’ve paid good money for them and don’t want them falling apart. But too often, that idea of maintenance stops at our stuff. In reality, it extends to you. It extends to your mental health. Good things don’t just last on their own. They need to be sustained.

What Happens When We Don’t Maintain Things?
Ignore your plumbing for long enough and you’ll see the results. Rainwater tanks that once gave clean water can now become a breeding ground for mosquitoes and bacteria. The toilet can get blocked. And the drain can start making weird smells and sounds. When things are ignored, they become chaotic. It doesn’t happen all at once. It creeps up. Then suddenly, you’re left with a mess so bad the only solution is to call a professional. If we understand that we should protect our plumbing, how much more should we protect our
minds? There are many things that we know we should be doing. Exercise, taking breaks, listening to music, spending time in peace, and addressing excessive stress. However, all too easily, these habits can fall away. And then, too, can things start to get out of hand. We find ourselves more anxious, stressed, and burnt out. And when it gets too much, the smartest thing we can do is call in a professional, like a therapist, to help set things straight.
Life is a juggling act. But not all the balls are the same. Some are rubber and can bounce if dropped. Others are glass and if you drop them, they shatter. Your health belongs firmly in the “glass” category.

The Value of Preventive Maintenance
In plumbing, cleaning filters, doing inspections, and checking tanks is very important. It’s about addressing any problems right as they emerge, or before they even start. That way, it’s a lot easier for everyone, and many headaches can be saved. The goal of this is to prevent the homeowner from having to make an emergency plumbing call. The same principle applies to us. Preventing stress from piling up is always easier than fixing a breakdown. Ensure the ‘health pillars’ on which you stand are steady. Exercise, for example, is like flushing your system. It keeps things moving, clears out the tension, and gives you resilience to handle pressure before it clogs you up. Preventing something like excessive stress is always better than waiting for it to get out of hand.

Spotting Early Signs
Very few things collapse as soon as they are neglected. Usually, it takes some time to slowly fall apart. It is more like a gradual descent into chaos rather than one big fall. For pipes, if you throw grease down the sink, over time, it will accumulate in the pipes and restrict the water flow. With repeated use, you’ll notice the drain draining slower and weird sounds coming from it. These are the warning signs. If the homeowner ignores these, then the drain will become
completely blocked. Our lives are surprisingly similar to plumbing systems. Once we take our foot off the pedal, we can gradually descend into chaos.
And that’s kind of a good thing. Having it happen gradually means you can still progress and save yourself even if you have made a mistake. Just imagine if after every time you skipped the gym, you started from square-one. However, the problem with this is that we can get complacent with the way things are. Even if things aren’t good, we can say ‘she’ll be right’. We can ignore the warning signs, because we might not crack just yet. But this is never recommended. In mental health, you should look out for signs of irritability, constant tiredness, always feeling stressed or anxious, withdrawing from people, and a loss of motivation. These are like the little warning signs your body gives that it might need some help.

Building a Maintenance Plan
When you have to do maintenance checks for the plumbing, you can’t just do it when you feel like it. You have to set up a routine for every few months to do some inspections and cleans. This makes it much harder for problems to remain unaddressed or unseen. In terms of mental health, you also need to establish some sort of routine for yourself. You can decide to go to the gym 3 days per week. You can decide to take a break and read a book to relax every night. You can get in the habit of listening to relaxing music. For me, these are the habits that I’ve developed to maintain my mental health. And if your mental plumbing is about to burst, you can always call the professionals to help you
out.

Conclusion
A plumbing system looked after lasts for decades and gives everything peace of mind. But good things don’t last by accident. They last because you look after them. And for you, you are worth being looked after. So keep an eye on the little things. Focus on maintaining good habits for your health. A little bit of rest, and exercise can go a long way. Otherwise, like plumbing, you might just burst.

About the Author

Justin Hope runs the website Plumbers Rockhampton. Plumbers Rockhampton is dedicated to providing quality plumbing solutions to local problems in Queensland, Australia. They provide services for a variety of plumbing needs, ranging from renovations to commercial plumbing.

Sponsored Post: Do you Qualify for SSDI?

Hello all! Welcome back to my blog! I have talked a lot about being a person with a disability here on my blog. 

I was born with my disability, but many people with a disability were not. The disability group is unique in that it is one minority group where people become part of it at any time. Accidents can happen, or illness can lead to disability. Also, as a person gets older, there is a large chance of them becoming disabled. Of all people with a disability, half are age 65 or older in my country of the United States. Overall, approximately 1 in 4 adults are living with some type of disability in the United States.

Unfortunately, some people have a disability that is debilitating enough to keep them from working. Fortunately, there is financial support available for such people. One program set by the United States government is Social Security Disability Insurance or SSDI. With SSDI you can receive financial support monthly. If you are dealing with a disability, you can get help to find out if you are eligible for SSDI and even how much money you might get each month from Disability advocacy group Disability Advice. A post with an SSDI calculator and details about SSDI benefits can be found on their website. 

The post was written by Linda Cosme, JD. She has extensive experience as a lawyer and advocate for people with disability. She is currently Vice President of Disability Policy and Strategy at an advocate organization called Citizens Disability. Independent Legal Consultant for those seeking SSDI, appeals officer for the Social Security Administration, and Case Adjudication Specialist for Disability Determination Services were some of her other roles. 

Checkout Disability Advice’s website and find out more about SSDI and if you should apply. Click here.

Thankyou for reading! Until next time!

– Charli 

Why is Healthcare so Expensive: Part 3

Access to affordable healthcare is a huge issue in the United States. Many people are uninsured. Access to healthcare is necessary and should be a right. Read more about the issue with healthcare in my latest blog post.

Some time ago, I wrote two posts entitled “Why is Healthcare so Expensive?”. In those posts, I went over how difficult it can be to get mental health services and some of my medical costs as a person with a chronic condition and mental illness. You can read part one here. You can read part two here.

For those who are new to my blog, I live in the United States. Here in the USA, healthcare can be quite costly. A three day stay in the hospital can run you around $30,000. A woman usually stays in the hospital between 24 hours to four days after giving birth. My own mother stayed in the hospital for around three days after having me. That’s where health insurance comes in. In order to have insurance, you have to pay what is called a premium. This is the payment to the insurance company to keep your insurance active, which is usually a monthly payment. My insurance plan covers the costs of my doctor visits and medication bills completely, but that is not the case for most Americans.

For many Americans, there is a copayment. For a doctor appointment, one family member of mine had to pay over $700 in copayment. Another family member recently renewed her insurance plan, and she has to pay around $1,100 in medical bills before her insurance even kicks in. This is called a deductible.

Healthcare is big business here in the United States, with the health insurance business valuing at $1.60 trillion. In 2023, 25.3 million people were uninsured between the ages of 0 to 64. Among those uninsured, 63 percent of people between the ages of 18 to 64 cited not being able to afford insurance as the reason for being uninsured.

There are two services I have always believed all people should be entitled to: good education and good healthcare. A healthy and educated nation makes a strong nation. I believe we as a nation need to do more to help the citizens have better access to healthcare.

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