Welcome back to those who have visited my blog before! If you’re new, welcome, and let me introduce myself!
My name is Charli Dee. I was born with a genetic disorder called Turner syndrome. Turner syndrome is a condition when a girl is born with one of her X chromosomes partially or completely missing. This can lead to a lot of complications. I talk a lot about the complications I deal with here on my blog. You can visit those posts here.
I have also been dealing mental illness, more specifically depression. I talk a lot about my mental health journey on my blog as well. You can visit those posts here.
For a long time, I kept my struggles to myself. That means I didn’t have peer support from people who would understand what I have been going through. Part of why I started this blog is to share my experiences so people know they are not alone. Now I am starting a Facebook group so we can support each other.
If you are interested in having a private safe space to discuss your unique experiences, join my brand new Facebook support group. Click here to join.
Thankyou for reading and your support! Let’s continue supporting each other!
A very popular YouTube couple expecting their first child chose to terminate the pregnancy after discovering the baby had a high chance of being born with Down syndrome. He shared the news with complications that can come with the condition.
“Down syndrome carries a very HIGH risk of miscarriage and usually comes with heart defects, structural abnormalities, developmental issues, shorter lifespan, etc. As excited as we are to become parents, this was a gut-punch”, he shared with his followers.
Yes, Down syndrome comes with complications. However, the complications are only part of the story. Down syndrome is actually a very common, “occurring in 1 of 700 live births”. Many people with Down syndrome live fulfilling lives, with some going on to college and living independently. With medical and technological advancements, the lifespan of people with Down syndrome has increased to around 60 years of age.
I have Turner syndrome, which is a genetic disorder like Down syndrome. Turner syndrome also comes with a lot of complications. Turner syndrome is a genetic disorder, and can be diagnosed in the womb through genetic testing like Down syndrome. I wasn’t diagnosed until I was around 13 years old, but it is possible my parents could have found out I have Turner syndrome before I was even born. They would have been able to choose abortion due to the fear of complications and raising a special needs child. My parents would not have chosen that route. However, they could have, and I would not be here sharing my story on my blog.
I’ve seen expecting parents express fear at having a child with Turner syndrome, just like I’m sure expecting parents do when having a child with Down syndrome. Knowing your child will have special needs can be scary. Raising a child with special needs is hard. I get it. This is why support and sound facts are important, all the facts. Yes, parents need to know life might be hard for their special needs child, but parents also need to know life can be happy and fulfilling for that child as well. It’s not all gloom and doom.
I’m happy to be alive, and I know I’m here for a reason. I believe that YouTube couple’s baby had a purpose too. Sadly, we’ll never know what it would have been.
Watching the documentary on Theodore Kaczynski made me think about violence and mental illness. It is true that Kaczynski was diagnosed with schizophrenia and depression, and he committed crimes. It is also true, however, that mental illness doesn’t have to lead to violence. Theodore Kaczynski’s case was years ago. Mental health advocacy has helped to break the stigma on mental illness. However, there is still a ways to go. Just last year in 2025, the vice president of the United States JD Vance stated there is a mental health crisis in the United States when addressing the concern of gun violence in the country.
“We really do have, I think, a mental health crisis in the United States of America. We take way more psychiatric medication than any other nation on Earth, and I think it’s time for us to start asking some very hard questions about the root causes of this violence,” the U.S. vice president said.
Robert F. Kennedy Jr. , who is the Health and Human Services Secretary said the National Institutes of Health are “launching studies on the potential contribution of some of the SSRI drugs and some of the other psychiatric drugs that might be contributing to violence”
JD Vance and Robert F. Kennedy Jr. seem to be assuming that mental illness causes violence. The truth is, only around 3 to 5 percent of violent acts are committed by people with severe mental illnesses. Also, only around 1 percent of gun related deaths are caused by people with severe mental illnesses. People with mental illnesses are actually more likely to be victims of a crime than perpetrators. For instance, Schizophrenia is a very stigmatized mental illness. In one research study, around 2.3 percent of people diagnosed with schizophrenia had been charged for a crime, while 34% of people with the condition had been victims of a crime around the same time of the study.
I have long been under the impression that mental illness is not an excuse for evil deeds. An evil person is just evil, whether that person is living with mental illness or not. I have a family member who works with children with disabilities. Sometimes the parents coddle their children. Sometimes if the parents are told that their child is biting or scratching the teacher and other children, the parents might say “my child does that sometimes”. Wrong response. The child should not be not be attacking the teacher or other children any time. Disability does not need to lead to bad behavior. Same with mental illness. Society should not immediately point to mental illness as the reason a person committed a crime. That only leads to stigma around mental illness, and many people believing that having a mental illness equals violent. That can cause a person with mental illness to avoid getting help because they don’t want the label. I used to be one of those people.
More and more people are reaching out for help with mental illness. More and more advocates are speaking out. I love seeing it. Unfortunately, stigma still exists, so there is still work to do. If you are dealing with mental illness, know that there is nothing to be ashamed of. Know that your mental illness does not make you a bad person.
Thankyou for reading, and see you in the next post!
Life with Charli 