Imperfectly Perfect: Life with Turner Syndrome

“Do you wear bras?”, a high school classmate asked me one day.

“No…”, I replied with anticipation, waiting for her to get to the point. 

“You need to”, my classmate said, pointing at my “headlights”. 

That was during my last year in high school. Since I had just started showing signs of puberty that year, I did not see the need for a bra. Needless to say, however, after what my classmate told me, I never went out without a bra again. I was what one might call a “late bloomer”, or so I thought. During the summer before my first year in high school, I was diagnosed with Turner syndrome. Turner syndrome is a genetic disorder that affects girls. The condition is characterized by the partial or complete absence of one X chromosome. Many girls find out they have the condition around the same age I did, because one important marker of Turner syndrome is the absence of puberty. Girls with Turner syndrome generally can not go through puberty without hormone replacement treatment (which I started during my last year in high school). I always knew that I was different from my female peers. I finally found out why. 

When I hit my preteens I could not wait to transform into a beautiful swan. I watched all my female peers grow into beautiful young women, feeling more and more left behind with each passing year as I continued to show no signs of blooming. I couldn’t help thinking that I will always be an ugly duckling. I will never look like my female classmates, or the beautiful models I see on television or in magazines. My mother always tried to help me build a positive self image, but I just couldn’t let go of the feelings in my heart. 

Not only did I feel unattractive, I also felt incomplete. Women with Turner syndrome are usually infertile, and I was told by doctors that I was likely no exception to that rule. This revelation made me believe that I was not a “real” woman. I did not look like a “real” woman, and my body did not function like one either. It took some time for me to realize that there is so much more to a woman than her appearance. A woman is not defined by her breasts or hips, nor is an ample amount of them the mark of a beautiful woman. Beauty and women come in different forms. A woman who undergoes a mastectomy is not any less of a woman because of her lack of breasts. A woman who is infertile is not less of a woman because of her inability to bear children. I am not less of a woman because of some characteristics I lack due to Turner syndrome. Every woman is unique, but the one thing we have in common is that we all have our own special brand of beauty.

In a world where many people feel the need to get cosmetic surgery to “fix” what they see as imperfections, it is hard to be confidant and not feel the need to join the bandwagon. It takes strength to follow one’s own path instead of following the crowd, and over the years I have been slowly trying to build the strength to come into my own. I am learning to look past my “imperfections” so that whenever I look in the mirror I see a work of art

This is Life: Your Purpose Your Gift

Some time ago, I watched an interesting episode of a show called This is Life with my father. The host of the show is American Journalist Lisa Ling. The name of the episode was “America’s Busiest Coroners”. This is life focuses on shedding light on the unconventional lives of ordinary people in America. The Episode “America’s Busiest Coroners” focused on the people who deal with America’s dead. For this episode, Ling interviewed and shadowed the workers in the Los Angelos Coroner’s Office. 

During one part of the episode one of the workers took Ling to into the room where the bodies are kept. All of the bodies were stacked on top of each other like sardines. The worker told Ling that everyone who dies in Los Angelos ends up there. It doesn’t matter how wealthy or poor the person was. Everyone ends up in the same place after death. 

Another portion of the episode went over what happens to a dead body when it cannot be identified and no one claims it. When a dead body is brought to the coroner’s office an autopsy is done to determine cause of death, and an attempt at discovering the identity of the deceased person is made. Loved ones are also contacted, and the body is claimed. If the workers can not reach any loved ones of the deceased person, and the body is not claimed, the body is cremated and buried through the coroner’s office. 

One such body at the coroner’s office was found hanging from a tree. An apparent suicide. The person was an Asian American. This hit home with Lisa Ling, who is an Asian American herself. Ling couldn’t help but wonder if this person was alone in America. Possibly this person had no family in the U.S. with him, and he fell into what he thought was a hopeless situation. 

The end of the episode showed how the unclaimed dead were honored in the Los Angelos community. Every year people in the community gathered at the grave site of the unclaimed dead to pay their respects. Anyone in the community is welcome. Lisa Ling attended one of those gatherings, and she was very touched. Some of those people may have died alone, and we don’t know their names, but they were still human beings with their own dreams and stories.

 My father put into one word how we both felt after watching that episode of This is Life: “humbled”. It was a humbling experience. The episode reminded us of our mortality, and that everyone dies someday. Some sooner than their time. Death is not the most comfortable topic for most people, and no one wants to die alone. The episode “America’s Busiest Coroners” of This is Life made me think deeply on this topic. I don’t know what the future holds for me, however, I do know that I am a single woman. Also, I have my parents won’t be around forever. I have siblings, and though I know I can depend on them whenever I need them, they have their own lives to live. Will I be alone when I die? I don’t know. Will my body be treated with respect after I die? I hope it will, but I don’t know. Again, my future is uncertain, and how am I to know what happens to my body after I die? 

“It doesn’t matter what what happens after you die.”, was my father’s response. “What matter’s is what you do during your life while you’re alive”. 

I completely agree. “The dead praise not the Lord, neither any that go down into silence”. Psalms 115:17. I don’t know what the future holds, however, I know that I can choose in the present to do the best I can with what time God gives me on this earth. To those reading this, know that you are kings and queens. You have a purpose. Use your gifts to do what you can, while you can. 

The Journey Begins

Thanks for joining me!

Good company in a journey makes the way seem shorter. — Izaak Walton

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I’ve always loved writing, and I’ve always been pretty good at it! At least that’s what I’ve been told! I’ve been thinking of starting a blog for a while, and I’ve finally gotten a little time to do so! Sometimes we are too busy to slow down and do things we enjoy. Sometimes we let our talents go to waste because we are too busy to develop them. Life is too short to not enjoy it! So here I am writing my first blog post! What are your hidden talents? Do you take the time to appreciate your gifts and share them?  Let me know in the comments, and stay tuned for upcoming blogs! Thanks for the support!

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